National Registry for Oculopharyngeal Muscular Dystrophy Patients and Family Members

Principal Investigator
Sarah Youssof, MD
(HRPO #13-331)

Department of Neurology
MSC 10 5620
1 University of New Mexico
Albuquerque, NM 87131

Phone: (505) 272-6354
Toll Free: (855) 676-3721

How to Join the OPMD Registry

You are eligible to enroll in the OPMD registry if you:

  • Have OPMD or may develop it in the future.
  • Are related by blood to someone who has OPMD.
  • Are at least 18 years old.

The registry staff will review the information you provide to determine whether you qualify for enrollment.

To request an application by mail, or if you have questions on completing the form, call 505-252-3551.

We acknowledge the University of Rochester's National Registry of Myotonic Dystrophy & FSHD Patients and Family Members for serving as a model for the National OPMD Registry.